Invisible Pain

There was a status that came across my page a few days ago. It spoke about how people can't always tell when people are in pain. How people can be in so much pain but have the biggest smile on their face. Or even when they tell you that they are hurting they don't let on how much. Well I am one of those people. I used to just say I'm fine but I am trying to be more open with my feelings. It seems however not to be taking that way. In fact when I tell people anywhere near how I am feeling it feels like I am making them feel bad and I don't like that feeling. So I grin and bare it or at least try to.

I make the mistake of thinking that a lot of people in the world think like me and that's not true. I like to think that especially since other people are in pain that they would understand but they don't always. In fact some people can be down right mean. I am the nicest person but I am starting to become aggravated because being in pain and taking shit from people is nothing nice. There are only so many times that you can think about other people and what they must be going through to make your life a living hell while there is pain racing through your body.

It doesn't help that I am very young, which is another way looks can be deceiving. There is a saying that we (African Americans) say all to much to people younger then us; “You ain't hurting you too young to feel that way.” Even though it has been ingrained inside me since birth I try so hard not to say that to my son or anyone younger than me. I know how it feels to look like you are 20 and feel like you are 85.

Lately I have really been messed. I have been flaring up from the fibro, my legs, feet, and ankles have been swollen everyday. I have had a sore throat for at least two months. There are plenty days were it hurts so much to move my leg across the bed let alone walking. Do you know however how hard it is to convey that feeling to people that have no idea?

I get the feeling that people don't fully believe me when I say that I am in the amount of pain that I am in. What really hurts is that it is people close to me sometimes don't understand. I am constantly holding back tears on an everyday basis. Yet to some all I do is complain. I am trying to live life for me and to do that sometimes you just have to let your pain out. I am used to holding everything in especially my pain. I am trying to find my balance. If you all have any ideas please share them.

Read, Share, Learn

Ablackwomanlivinginpain

While the computer was down

9/1/11

Isn’t funny how I want to write every day but because my mind is so jumbled with stuff you can’t even get a whole sentence out. Then as soon as your computer is out repairs for weeks and  you are reduced to pen and pad that’s when you get the writing bug.

                My life has been good lately but with the good must come the bad. I breathing and alive but my health could be better (who’s couldn’t though.) I have a fiancée but we are still trying to figure each other out. Something we have waited all our lives for. It’s just that we are making sure that this is real because I am not trying to get married to get divorced. Don’t get me wrong I love him with my everything but he does have his ways (as I am sure I have mine.) We are planning a wedding and we don’t even have a “beer budget.”  Then my darling son is having a barrel of problems and no none of these problems have anything to do with my relationship.  Awwww… did I take away the easy answer? (Sorry didn’t mean to be mean Just a little on edge.) He is just not in a good place right now. Did I mention that I have had this big writer’s block for like ever. Even my hair is all over my head cause I don’t have the strength to do it myself. I feel so helpless. I am at my heaviest weight I have been at since ever! It’s hard to move because my body is breaking down.

                I feel like I am an old ass woman and I am only 28 years old. I can’t walk a block without needed to stop and sit down. It’s not because of my size. Although a lot of the time I do have to catch my breathe but I believe that is because of the asthma. I can’t walk because It hurts like hell my back starts twisting into this huge ball. The only thing that will stop it is my sitting down and relaxing. I have to cook in the kitchen with a chair. It’s just really mixed up right now.

                Ok this is what I wrote while my computer was out please leave your comments.

Yours with love,

A Black Woman Living In Pain

Blessings

The Lord is blessing me, right now, lord right now!

Am I still hurting? Lord yes! Are some things in my life still worrisome? Of course. Sometimes however you have to look at the things going right in your life, because if you are constantly focused on what’s wrong then you will surely go crazy.

So I would like to take the time out to give thanks to my family; My parents, sisters and brothers, my son, friends, and (not new but different) addition to my life; my man. He is the nicest, sweetest, caring  man that I know. He takes care of me and in turn makes me feel better. I love him so much that sometimes I feel like I am going to burst. One day last week I was going through something really emotional. I couldn’t even talk all I could do was write. He sat there behind me and rubbed my back the whole time. Never said a word just rubbed my back and kissed my shoulder. It was just what I needed and it made me love him even more. I met his family yesterday and they like me which is great because I like them as well.

Ok I am done gushing about him for now. The other thing that I am thankful for is the internet. I know weird right? What I am really trying to say is that the internet has made it so easy for people with common interest and aliments to get together and support each other.  So times you can feel like an island. If you feel that no one understands you. I am glad to have found groups and blogs where I can share and learn from people going through some of the same things that I am going through. If any of you all have Lupus there is a great group on facebook called Lola vs. Lupus. You all should check it out. Well I just wanted to drop a quick note. Hope to read from you guys soon.

Peace

A Black Woman Living in Pain

Could it Be?

Its hard to find love when you are a normal 28-year old healthy person. So just imagine how hard it is for an disabled, ill, 28 year old who walks around with a cane. I always want to know how in the world was I going to find someone who would like me. I knew that it would be really hard because it’s not like I can just go out and party. The club doesn’t have enough chairs for me to be guaranteed one all of the time and if I dance I am most likely going to need a massage. I mean right then, as soon as I leave the dance floor, if I can make it to the dance floor, if I can make it to the club. What happens when I am attempting to dance and my knee gives out or my back cramps up. Right one of two things either the club erupts into laugher or everyone rushes over to help the old woman up off the floor. I just don’t want to be put in that type of situation. Not that I am the clubbing type. However even if I was then you can see where that would go wrong.

So imagine my surprise when me and someone that has been in my life for quite awhile decided that we were going to get together. We reveled to each other feelings that we have for the longest time kept hidden. He knows that I am a lot of work and he wants to help me. There are a lot of people that might think we are moving fast but we know we are just doing what we have to do. I have learned at this young age in life that there if some point where you stop saying what you are and aren’t going to do, you just do it or you don’t.  He is willing to help me where I need it and push me when I need it as well. I am able to be myself around him as well as be people I never thought I could be. He is nothing I ever looked for and everything I ever wanted. With God, him and I working together we will last.

I knew from theory, logic, and having a bit of it in real life, that having someone to help me would lovely. But actually putting it into practice? Breathtaking! I remember in one of my 1^st posts I wrote about how hard it is for me to take a bath or stand long in the shower. One wonderful lady said that I should get my husband or significant other to help me because that’s what they had been doing. When I read that I ended up in tears because it had been so long since I had actually been that type of love and I didn’t know when I would end up back there. Now I have been showed how it feels to have someone to help me up when I can’t move, wash my back when I can’t reach, and hold me when I’m in so much pain that all I can do is cry. I know it’s the beginning but I believe this time it will last. Pray for us.

Happy in Love

A Black Woman Living in Pain